Photographer of Families, Small People and Delightful Places. Travel and Lifestyle Writer and Blogger. Lives in Newcastle, Loves the North, Often Accompanied By A Beagle Named Holly Bobbins

Saturday, April 27, 2019

Why I'll never give up, no matter what life throws at me



This week has not been the best week with regards to my health, if ageing is the cause then I'd quite like a refund please!  After several more conversations with doctors, my lovely longterm doctor thinks it's probably I have Fibromyalgia, basically it's a pain syndrome, yes, I know, you're sitting there thinking, "oh that does not sound fun" and you would be right.  It's actually quite possible that I've had it for quite some time as I've had all of the symptoms but they've always been looked at in exclusion rather than as a whole and it's only now because of me going through agony with my neck, head and arms that we finally seem to be coming to the same agreement.  it's a genetic thing and my mother has it and I'll be honest, I think there's a good chance (or actually not good at all) that Iain and Abigail have it as they already have symptoms.

My next step is to see a specialist physiotherapist who'll test my pain points and then depending on the outcome they'll refer me to a rheumatologist and possibly the pain clinic because currently, the neck pain is off the scale and I can't currently find the £600 it would take to make it better with Chiropractic or massage which is what I've done in the past.

The point of this blogpost isn't to whinge or complain though, I mean, I rock a disorder and I'm amazing at syndromes, yes it's another hurdle to get over but you know what?  No one has ever died from Fibromyalgia or Bi-polar or indeed Reynauds (that's all my disorders and syndromes right there, although I think Reynauds may well be a phenomenon).

Yesterday I went to my very first TEDX at Newcastle College, the theme was life finds a way and pretty much it was about health, life, death and mental health, it was one of the most inspiring events I have ever been to and it's only reinforced my ambition to one day give a TED talk.

Death, cancer, mental illness and suicidal ideations, all things which are the end of some and you know what, that is to be completely forgiven.  I have had times in my life where I could have crawled into a corner and never come out or where I thought those dark thoughts and nearly ended everything but in every case, just as in mine, the decision to fight onward, to choose life and to accept the things you can't change, it's those things which were paramount in all of the speakers lives just as in mine.

You see, if you fight against something you can't change, you are just using energy pointlessly, it's the fighting for the things you can change and moving onwards despite the situations, finding some kind of inner strength that you're not sure where it came from, those are the things which inspire other people.  Not only that, those are the things which define you as a person for the rest of your life.

So here I am, some days, the pain is so bad, even the good drugs won't take it away, the searing, burning pain at the base of my neck and feeling like my shoulders are like a giant breeze block because everything is in spasm.  the migraines I wake up with every day, the tingling and pins and needles in my hands, the pains in the centre of my hands which made me question if I was about to experience stigmata...  but am I about to give up?  Hell no, I've come to far for that.  I do have 2 companies to run and I've had to make a few adjustments to my work calendar just until it settles down again, the good thing about flare ups is that they are exactly that and so I should be back to tip top form soon enough.

Yes, it's tough that I can only work 1 day at weekends currently but if I look for the positive in that, it's actually pretty lush doing photography one day at weekends and then on a Wednesday because I am absolutely loving what I'm doing, I have the best work life balance I've ever had and every week I can't wait to get out there again with my camera.

It's funny how things happen I think, I did not know that when I started my garden that I would end up with haven where I might not be able to do lots of heavy stuff but I can enjoy it, it's reached that point where it's lovely just to sit in and listen to the trickling water fountain and watch the birds as they come and grab some food from our all you can eat bird buffet.

There are so many things to enjoy in life, so many things to be positive about that I refuse to let another disorder, a syndrome or pain destroy the happiness I've worked so hard to find within myself.
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